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Go to Toby’s Blog for updates on his progress in the USA
Toby’s Dream . . . . Is now Toby’s Reality!
Thanks to the fantastic hard work, donations, love and support that Toby has received we have been successful in our goal to raise enough money for Toby to go to America for his op. He leaves on the 21st of September and his op is on the 30th September. We are incredibly grateful to everyone that has helped us to reach this point, you have made a huge difference to our little boys life.
It is our intention to invite everyone that has helped us to a welcome home party for Toby just as soon as he is strong enough to enjoy it himself, so watch this space for details. Please continue to follow us on Toby’s Blog, Facebook, and on Twitter. We will update regularly whilst in America so that you can see how Toby progresses. No doubt he will have a few gems to share with you!
If you are new to Toby’s Dream then here’s what it’s all about:
Toby was born with Cerebral Palsy. Specifically Spastic Diplegia. This affects the signals that his brain sends to his legs and means that he cannot walk without significant aids.
Cerebral Palsy is a condition best, and most simply described as brain damage at, or before birth. The damage to the brain cannot be reversed. However, a break-through operation is being performed at The Saint Louis Children’s Hospital Center for Cerebral Palsy Spasticity in the USA. Their goal in treating children with cerebral palsy spasticity is to help them lead full and active lives. The operation, Selective Dorsal Rhizotomy, has proven very effective for permanently reducing spasticity in certain children with cerebral palsy, especially those with spastic diplegia.
The Saint Louis Children’s Hospital Center for Cerebral Palsy Spasticity is the most experienced team in the world, having performed this highly specialized procedure on over 2,000 patients.
The NHS are unable to fund the operation which will cost between £50,000 and £60,000 depending upon any requirement for orthotics and ongoing consultation. We need to raise this amount ourselves. In addition we will need to provide Toby with private Physiotherapy and hopefully a gym so that he can make the most of his operation.
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